The government shutdown could be a life or death situation for six-year-old Max Doerr.
“This is bigger than overflowing garbage cans and closed museums,” said Max’s mother Sarah. “This is kids’ lives.”
Max has not been receiving critical medical care due to the shutdown, because the FDA can’t approve new treatments. He was waiting on treatment from an FDA clinical trial.
“It confirmed my worst fear, and this was right about the time where the president was saying, I’ll drag this on for months, or maybe a year,” Sarah said. “And I thought, first, my son needs this treatment as soon as possible, he needs it last year. We don’t have time to wait.”
Max has a rare degenerative disease, which worsens over time. It will lead him to lose control of his muscles, and will likely cause him to be wheelchair-bound.
After backlash ensued over the child’s circumstance, the FDA is working with Max’s doctors to move the trial forward. But the government remains shut down as Trump continues to insist on $5.7 billion in funding for a border wall. The government shutdown is now the longest ever.
“This is what our government is supposed to do for us, as taxpayers, as Americans, and they’re not doing it, and it just doesn’t feel like those things should be held hostage by politics,” Sarah said.